It was MAGIC

 I really can't believe that we went to the MAGIC Convention in Chicago, and are home safe and sound. My beautiful little Mimi had an amazing consultation with Dr. Harbison, who announced to us immediately that Mimi is a Growth Hormone Deficient Baby! She wants Mimi to have her stim test right away. She also wants her to have an MRI to check her pituitary as well as cortisol and adrenal studies. (scary)
Mimi was so beautiful here as a little butterfly. I, on the other hand, was about to faint...this was half an hour after our consultation.

 I wandered around the convention hall seeing friends and faces I'd met on Facebook. Little children from photos coming to life, running in front of me, hugging their friends...eating watermelon, being silly.

 Mimi waited for Heloise in the hallway. She wanted to meet her online friend from Canada so badly. It was so sweet to see them first see each other. They brought with them 33 pairs of French shoes from Heloise to share with other tiny girls. (size 16-20). how cool...

 Suddenly we knew what we were dealing with, with Mimi. and in minutes, I have all the growth hormone reps in full view. I was able to ask questions and gather literature to bring home. I have a sack of GH medication pamphlets. Well they aren't pamphlets. they are like super glossy info packs. of course. but rather timely!

 I spent Friday in lectures learning about Growth Hormone deficiency, and Laron syndrome, cortisol dangers, puberty, and all sorts of other things. Mimi, Max, and Dad went to the Brookfield Zoo with a tour. We met up at 5pm in the room, and the kids got ready for the costume dinner. They were so excited.

 Here's some photos of the night. Mimi thought it was her birthday party. Max wanted the dancing to start right away. He got on the dance floor way too early.

Our friends...

Mimi and "my new best friend!"

Superman, and little ones.

and with a big one. LOL

My first on the floor dancers (well, running around-ers)

 We drove a total of 1500 miles. At one point we were half an hour from IOWA! I saw so many things I've never seen before. And finally, someone had an answer for me. After three long years.

 

 We drove home feeling empowered. Knowing what we need to do. 

Amazed. and feeling educated and supported.

Sandy

I was not at all nervous about Sandy. I've learned a little more about Mimi and her lack of growth. It is appearing that she has some kind of dwarfism. It could be pituitary...in which she could be aided by growth hormone. But maybe it's not...I'm a bit stunned. She is so gorgeous and precious. Always the researcher, I have discovered that the Little People of America National Conference 2013 is in D.C.!
Let's see if she grows till then...and what the doctors say. My love.
Anyway, back to the storm...I tidied the house and made chili, jello, cookies, and hard cooked eggs.

I toured the outside of the house and took pictures. We've secured things. We put lots in the garage. We cleaned out the gutters - put covers on the chairs. Every neighbor around me still has their normal stuff out.

I'm feeling like anxiety Girl Scout. But then watch the news and the news reporters are SO SERIOUS. Then I get a little panic in my chest.

I am nervous about the big trees in the front yards of my house and my neighbors. I parked my car elsewhere, not in the driveway.

I have upped my typical storm plan. I now know to hide in the basement bathroom if the wind is dangerously insane (which would be super fun with two kids considering how narrow the bathroom is). I found a little sterno stove. We have a fancy radio light thing. Wondering what Max would do without Jake and Neverland Pirates, and Mimi without Peppa Pig. and no heat...that's not very nice is it?

well here we go...let's see what happens...!