Friday, March 29, 2013

Mimi and her Sure Steps

Mimi had a great Good Friday morning.
She was so excited to get her "new shoes"...her Sure Step orthotics. They will help her run more easily.

She waited patiently for Chris Lawall from Lawall Orthotics and Prosthetics to arrive from Hershey. She took a photo of him when he came in:)
They were made just for her and she helped pick the pattern and the strap color.
She loved them and loved looking at them.

She took off running around the house. Now I'm not sure I'll be able to get them off of her!

 Less falling and more stability...we're all so happy for that.

Monday, March 25, 2013

March Au Pair Meeting

Last night I hosted the March Au Pair meeting at my parents house. We completed our poison awareness safety segment, and then created a blanket to donate to the pediatric unit of Lancaster General Hospital.
We will also be donating small books and toys to the unit.
Caro, from Germany, came straight from the Zenkaikon convention (Japanese Anime) at the Marriott in her Cosplay. She hand stitched it herself!
She made the news on Friday in her favorite look You can check out Caro and all the great costumes here:

From Wikipedia:
Cosplay (コスプレ kosupure?), short for "costume play", is a type of performance art in which participants wear costumes and accessories to represent a specific character or idea from a work of fiction. Cosplayers often interact to create a subculture centered on role play. A broader use of the term cosplay applies to any costumed role play in venues apart from the stage, regardless of the cultural context.

Friday, March 22, 2013

I'm in OZ

Well I thought we might know the results today for Mimi and her Russell Silver Syndrome genetics test. Oh, if it's not this, it is probably a type of Growth Hormone Deficiency. This is what the munchkins had. They are proportionate dwarfs with pituitary dwarfisms, and did not have growth hormone injections. It would (will?) be suggested that Mimi have 4000 shots over the next decade if she has similar 
(and they are already "mentioning" it). In fact, it's the treatment for both Russell Silver and GHD as they call it.

When I thought the answer was coming about the RSS test today my heart was racing, I was pacing. Our genetics counselor said, "it still says pending, let me call the lab. if i don't call you back in 10 minutes, i don't know yet." She didn't call back. Maybe tomorrow or another day.


Rather fitting that the new Oz movie is out.

There is a lot to research over here at the French house. Does one stay au naturale little person size or pump it up with some GH? I am still figuring this out. but My little Ms. Einstein won't let me on the computer very much. I've started to print research articles and read them later. They are scattered next to my bed and then are slipped into my bedside bookshelf next to Elmo Visits the Doctor. 
All this cooking and playing I do all day, and Mimi is now telling me she wants "two" of this or that. geez, bossy!

Nevertheless it was a happy day.
There's no place like home.
with your little munchkin.