Wednesday, January 16, 2013

The latest...

I have recently accepted a position with my old company, Cultural Care Au Pair, out of Cambridge, Mass. I'll be supporting au pairs and families here in the Lancaster area. I'm excited to return to this position.

(but don't worry, I'm still creating accessories from Izzy Lane tweed...look for more pieces at Mommalicious by the end of the month).

I've spent the last couple of weeks retraining online, and will attend a training conference in the next few weeks.

in other news...

I am still convinced that Mimi has more going on than just your standard Constitutional Short Stature. Her nutritionist rang today and she talked with me about outfitting Mimi with a continuous blood glucose monitor for three days. I was a little startled by this, but I don't think Mimi's eating habits are at all normal.
Mimi begs for food often from 11pm until 1am, even though she is still logging in 1400 calories a day on average. She now has gram gaining goals, and with her dairy allergy, we are pacing the aisles of Giant looking for fattening, protein rich things she'll like. (First couple weeks of January, and I'm searching for fattening foods, with the highest calories, while other shoppers whisk past me with their energy bars and salads!)

While at the store the other day, Mimi said hello to a little girl. The girl said to her mother, "Mommy! That baby can talk!"

Max came down with the flu on Tuesday, the same day he was supposed to get his flu shot. I ended up taking his shot instead, and am suffering with some aches of the universe. I'm just hoping it stays away from Mimi, who hugs Max constantly, and plays doctor, with her giant medical kit.

Have a great week!

Thursday, January 10, 2013

Post Genetics...

Dear Mimi, when we took you to Hershey yesterday to see the genetic specialist, you captivated the entire "team." In fact, I think your doctor complete with bow-tie, fell in love with you. Above is a picture of you yesterday afternoon back at home in your confidently aqua new blue shirt that you wore to the visit.
There were two resident students, two genetic doctors, and two nurses. Your doctor diagnosed you as a beautiful creature who probably, in his opinion has Constitutional Short Stature. He thinks you are tiny and will watch how you grow, thinking you will be about five feet tall.
Today I felt his answer might not be completely right- or that maybe something was missed.
I felt so tired today, that I was in danger of having a stroke!
but behind the scenes of your mother, you have other people watching out for you.
The author of the Russell Silver book, Jennifer Salem, contacted me last night and asked to review your growth. She has given me instruction on how to handle the next year, and I have called the genetic office back and asked them to run a specific blood test that she recommended.
I will remember that appt fondly yesterday, your doctor walking us through the facility himself to have your hand x-rayed, and declaring multiple times that you are so beautiful! so bright! with skin so soft! and hair so silky!
cheers to you:)! Ms. Captivating:)

1/28/13 UPDATE: Hershey Genetics has decided to test Mimi for a variant form of Russell Silver Syndrome.

Tuesday, January 8, 2013

What Awaits Little One I do not know for sure...but I think I know...

My little Mimi, you see a genetics doctor tomorrow. I hope the doctor can tell us why are so small and not growing well.
You are 32 inches tall and you weigh 21 lbs 15 ounces.
You are 26.5 months old.
I've done all the research I can find. I think you have Russell Silver Syndrome.
I've found you little friends who are growing like you.
I've gotten used to you not outgrowing your clothes, and taking in the waist of your pants. I don't mind anymore that when you stand next to another two year old, sometimes you just reach their shoulder. You are silly and so smart.
I love you, my Mimi Angeline. you fabulous and tiny little one. You can be and do anything you want to do no matter your size. You show them tomorrow, give them all you got...